Abstract
Introduction: Population aging leads to chronic diseases and dependency on daily activities, making caregivers essential. The aim was to explore the perceptions and concerns of these workers.
Method: In 2023, a qualitative study that included ten individual and semi-structured interviews with caregivers was conducted in a tertiary hospital in Buenos Aires, Argentina. The obtained material was subjected to thematic content analysis, and through triangulation, the text was coded by emerging dimensions.
Results: Women predominated (90%), middle-aged (52 years), with low education and training through experience. Five major topics emerged: (a) responsibilities and functions; (b) working conditions; (c) emotions and bonding issues; (d) communication problems; and (e) vision and experience of the health system. Work tasks included emotional support, communication with the team (doctor and family), and delegation of household tasks. Communication problems were highlighted due to technical language, lack of time, and recognition of their role. The lack of continuity in post-discharge follow-up was a systematic problem, although they positively valued the information in the epicrisis. Work difficulties included long hours, episodes of violence (physical, verbal, psychological, or emotional), low salaries, and informal hiring methods (without rights that protect rest or health). Despite this, they expressed dedication and empathy toward patients.
Conclusions: This study's results provide valuable information for improving the working conditions and safety of healthcare workers, highlighting the need to improve both their work environment and their social recognition.
References
Schwartz AJ, Riedel RF, LeBlanc TW, Desai D, Jenkins C, Mahoney E, et al. The experiences of older caregivers of cancer patients following hospital discharge. Support Care Cancer. 2019;27(2):609–16. http://dx.doi.org/10.1007/s00520-018-4355-2
Figueiredo M do LF, Gutierrez DMD, Darder JJT, Silva RF, Carvalho ML de. Formal caregivers of dependent elderly people in the home: challenges experienced. Cien Saude Colet 2021;26(1):37-46. http://dx.doi.org/10.1590/1413-81232020261.32462020
Lara LEB, Zambrano CNS. Niveles de sobrecarga en cuidadores del adulto mayor con y sin deterioro cognitivo. Estudio comparado. Rev Eug Esp 2022;16(2): 67-80. https://doi.org/10.37135/ee.04.14.08.
Abuatiq A, Brown R, Wolles B, Randall R. Perceptions of Stress: Patient and Caregiver Experiences With Stressors During Hospitalization. Clin J Oncol Nurs 2020;24(1):51–7. http://dx.doi.org/10.1188/20.CJON.51-57
Guía de recomendaciones para la contratación de Cuidadores y Cuidadoras. Gobierno de República Argentina 2020. [citado 29 Ago 2024 Aug 29]. Disponible en: https://www.argentina.gob.ar/desarrollosocial/registrocuidadores/guiaderecomendaciones
World Health Organization. Global status report on the public health response to dementia: ?xecutive summary. 2021. [citado 29 Ago 2024]. Disponible en: https://www.who.int/publications/i/item/9789240033245
Rosenthal JL, Li STT, Hernandez L, Alvarez M, Rehm RS, Okumura MJ. Familial Caregiver and Physician Perceptions of the Family-Physician Interactions During Interfacility Transfers. Hosp Pediatr. 2017;7(6):344–51. http://dx.doi.org/10.1542/hpeds.2017-0017
Isac C, Lee P, Arulappan J. Older adults with chronic illness - Caregiver burden in the Asian context: A systematic review. Patient Educ Couns. 2021;104(12):2912–21. http://dx.doi.org/10.1016/j.pec.2021.04.021
Giraldo Molina CI, Franco Agudelo GM. Calidad de vida de los cuidadores familiares: Life Quality among Family Carers. Aquichan. 2006;6(1):38-53.
González-González C, Cafagna G, Hernández Ruiz MDC, Ibarrarán P, Stampini M. Dependência funcional e apoio em idosos no México, 2001-2026. Rev Panam Salud Publica. 2021;45:e71. http://dx.doi.org/10.26633/RPSP.2021.71
Kraun L, De Vliegher K, Vandamme M, Holtzheimer E, Ellen M, van Achterberg T. Older peoples’ and informal caregivers' experiences, views, and needs in transitional care decision-making: a systematic review. Int J Nurs Stud 2022;134:104303. http://dx.doi.org/10.1016/j.ijnurstu.2022.104303
Noureldin M, Plake KS. Correlates of caregivers’ involvement in the management of older adults' medications. Res Social Adm Pharm 2017;13(4):840–8. http://dx.doi.org/10.1016/j.sapharm.2016.09.009
O’Conor R, Eifler M, Russell AM, Opsasnick L, Arvanitis M, Pack A, et al. Caregiver involvement in managing medications among older adults with multiple chronic conditions. J Am Geriatr Soc. 2021;69(10):2916–22. http://dx.doi.org/10.1111/jgs.17337
Hall S, Rohatinsky N, Holtslander L, Peacock S. Caregivers to older adults require support: A scoping review of their priorities. Health Soc Care Community. 2022;30(6):e3789–809. http://dx.doi.org/10.1111/hsc.14071
Moore P, Gómez G, Kurtz S. Comunicación médico-paciente: una de las competencias básicas pero diferente. Aten Primaria 2012 Jun;44(6):358–65. Disponible en: http://dx.doi.org/10.1016/j.aprim.2011.07.008

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Copyright (c) 2024 Maria Florencia Grande Ratti, Diana Hongn, Inés Ichazo, Sofía Rossetti, Delfina Murature, Bernardo Julio Martinez, Romina Yasmin Perez Manelli
